The lack of updates.... Ugh.
We have been busy, busy, busy. With summer coming to an end, I promise to update more. I will post soon about all we have done this summer. We have been busy living life - camping, swimming, amusement parks, etc... so stay tuned.
We were very close to taking Sam off of Omegaven beginning in September. Things have come together though and we will be traveling to Boston again in September and keeping Sam on Omegaven.
Unfortunately, we also found out last week that Omegaven will not be approved by the FDA this year as we had hoped. Right now it looks like it will not be approved for use in the U.S. until 2015-2016 at the earliest. This means we will need to continue to travel to Boston every 8 weeks if we want to keep Sam on Omegaven. This is what we feel is best for Sam and will continue to do this until we just aren't able to anymore.
This is where we need your help.
We started a new campaign (link below) to help raise funds to cover travel expenses for the next year (or longer). If you have ever donated anything to Sam or helped with any of our fundraising efforts, please do not feel obligated to donate. We are just asking our friends and family to promote this link in any and every way you can, as often as you can, for the next 75 days. The more traffic we drive to the site, the better the chances that Sam's story will be featured on their front page which will help us raise more funds - plus there is a small token of gratitude for anyone who donates $25 or more.
So, please, share this link and encourage your friends to share the link.