Sam and I arrived home late this afternoon. The last three days have been mentally and physically draining and I am glad that they are over. I do not, however, think that we are out of the woods yet.
My frustration with the hospital grew continually with each moment that I spent there and it was probably a good thing that we got out of there today as I don't think I could have taken anymore. I had hoped that I could meet with GI, surgery, and the central line tem before I left so that we could try to put our heads together to help come up with a plan for future stays to help get Omegaven for Sam while he is inpatient in Milwaukee. That never happened. I wanted to meet with the central line team to try to brainstorm ideas on ways to keep Sam away from his line. That never happened either.
So we are home with antibiotics and will we continue them for 5 more days. Sam's site is better than it was, but it is not great. I would say that we have about a 25% chance of making this line last past our Boston trip in two weeks and a 50% chance that we will end up back in Milwaukee next week.
To add to our frustration, we were only home an hour and Sam had already destroyed another dressing.
Tonight when I checked on him 45 minutes after he went to bed he had already worked his way out of the wrap that we put around him to protect his line and dressing from his hands.
It does look like we will at least be home for the weekend so we are moving ahead with plans for Sam's birthday party. I may sleep through it though.