Tuesday, May 12, 2009

Off To Boston

Sam and I are off to Boston very early in the morning, but I wanted to do a quick post to let everyone know how our tests went this week.

The main thing we learned from the tests is that Sam does not have Acid Reflux. We were starting to assume this because he has been off of all reflux medication for well over a week and there has been no major change in his vomiting.

The second thing we learned is that Sam's stomach is abnormally small. Again, not shocking since he hasn't had anything in his stomach for the better part of 10 months. This could be part of the cause of his vomiting. Even though his body is producing a normal amount of gastric juices, there just isn't any room for it, and up it comes.

Right in line with the small stomach, his pylorus (the opening from his stomach to his intestines) is very, very small. This could also be the cause of his vomiting because his stomach contents are not able to drain properly.

Once piece of really good news is the there was not an ulcer to be found anywhere in his digestive system. This means that the ulcer he had in his esophagus a year ago has healed and that his vomiting as not caused any new ulcers.

We were presented with a few options from Milwaukee on what they can do to help with this, we will see what Boston has to say and then post more about our options while we try to make a decision.

Tomorrow is going to be a challenge as Sam does not like to be held - he wants to be down on the floor and able to move around. I have a sneaking suspicion that tomorrow is not going to be an enjoyable plane ride.

Wednesday, May 6, 2009

Busy Days

First off we wanted to welcome the newest member of our family, Everett. Everett was born last Friday morning and Ryan was so excited to have a new cousin. Sam, however, could care less...

Other than new members being added to our family, we are headed into a crazy week. Tomorrow (Thursday) Sam will be headed to Milwaukee for his upper GI study. Friday Oma will be arriving for a visit all the way from Georgia. Monday we will head back to Milwaukee for Sam's endoscopy. Wednesday Jason and Sam fly to Boston.

Mixed among all of that we had plumbers at the house today and I can't wait to brush my teeth tonight in a bathroom sink that actually drains after I wash dishes in a sink that actually drains, while doing laundry without the washer backing up all over the floor. While Sam and Jason are in Boston work will begin on our new windows, doors, and siding. Right about the time that is finished we will be headed to Chicago to spend a day with Bo, Jose, and Kinn which will be a nice little break before we start working on finally getting some landscaping done around the house.

Breaking our hearts this week is the fact that Sam is leaving the cuddle stage. He is getting very independent and wants to be down where he can move around, stand, and walk.

I miss my baby already and we are just not prepared for him to be a toddler yet. We missed so much in this first year with Sam being so sick and hospitalized so much. Sam is quickly learning what "no" means although most of the time he just grins at you and keeps doing what he was doing.

Sam's vomiting has still been an issue this week, although not as bad as we feared being off of the reflux meds. Hopefully we can make some progress this week in that respect with the tests in Milwaukee and our trip to Boston.

We will probably not get final results from the upper GI study until Monday, but we will post again as soon as we hear anything.