Sam's weekly labs today show that his direct bilirubin has dropped to <0.1 (which means pretty close to zero)! The normal range for this would be 0 to 0.4. When we first arrived in Boston Samâ€™s direct bilirubin was just below 8. Overall the rest of his labs continue to look good as well, we still want to see his liver enzymes come down a little more.
There is not much else to share as our lives have been simple and excitement free for the last several days. Sam continues to be happy and healthy. We're still tired, Sam still requires a great deal of energy and attention, but it is nice to go to sleep at the end of each day with our whole family sleeping peacefully under one roof.