Thursday, October 2, 2008

A Surreal Experience

Today I took Ryan to the doctor for his 4 year check up and a flu shot. Every time they asked me a question about Ryan I would have to stop and think about my answer because my Sam answers are so hard wired into my brain. It was the strangest feeling to be talking to a doctor and not be having a conversation about Sam.

Sam hit 12 pounds today! He is doing well on the antibiotic and we have not experienced the drastic increase in his output that we were expecting.

We attended the NICU monthly pizza part tonight. It was good to see familiar faces again and it is always nice to see a wide range of kids who were in the NICU for one reason or another doing so well. It will most likely be the last one we will be attending until spring due to RSV season being right around the corner. That is the last thing we need right now.

I know that there are people from all over who read Sam's journal. If anyone out there is in the Shakopee, MN area we encourage you to attend a benefit for the family of Sydney Markie. Sydney was also diagnosed with Microvillus Inclusion Disease and lost her battle on July 22, 2008 after receiving a multi visceral transplant in Miami. More information on the benefit for her family can be found at:

Our friend Carter is still continuing to struggle in Boston. Please continue to keep your thoughts and prayers with Carter and his family:

If you don't see a post here far awhile, don't panic. No news is good news and we are hoping for a few days of no news.

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