We are still at home, waiting for Sam's site to heal. The late night /early morning antibiotic infusions are making for a long week, as are the daily dressing changes needed to monitor and keep Sam's site clean. Yesterday we saw a little improvement in the redness around the site. Today the site looked about the same as yesterday, but I accidentally created a new problem.
When Sam was younger we used to clean the area around his site with chlorhexidine. While Sam was in Boston initially he developed a sensitivity to the chlorhexidine and we stopped using it and switched to using Povidone-iodine. Becuase we have been battling so many site infections we started scrubbing Sam's line with chlorhexidine as the reports say that it is more effective on plastic than Povidone-iodine.
Yesterday while doing his dressing change I thought we would try chlorhexidine again. Bad move. We are down dealing with blisters all over the area around Sam's site. Another thing to keep clean and to watch.
Other than that Sam is still doing well and we are still hopeful that we are going to beat this infection and save his central line.
I also wanted to share an article from the from the London Free Press in Canada about Hunter. I mentioned Hunter a few months ago as his family contacted us when he was diagnosed with Microvillus Inclusion Disease. A link to the article is below:
That's all for tonight. We will keep watching Sam's site and will post again if there are any changes over the next few days. I guess this officially puts an end to our planned camping trip this weekend. I am starting to think that Sam may never get to go camping with us...