I am not even sure where to begin for today...
First off, Sam is 1 month old today. Happy Birthday Sam!
Sam's blood gases and PH continue to be stable. Unfortunately he is still losing weight. Today they became concerned that his liver may not be functioning properly due to the lack of color and consistency of his stools. They scheduled an ultrasound for his liver right away. They prepared us for the fact that there could be issues with his liver, best case scenario would be something that would require medication or dietary restrictions, worst case would be the need for a transplant. Sam should not be losing weight. His calorie intake from the IV and the formula that he is getting should be more than enough for substantial daily weight gain, instead he has been losing about an ounce a day. Now they just need to figure out why.
They did the ultrasound of Sam's liver and it appears that everything is normal. They did find, however, that he has sludge in his Gall Bladder. At this point the results were inconclusive as to why there is sludge, or what exactly the sludge is, so they will begin to examine this more closely tomorrow.
Deb and I are both mentally and physically drained. Both of us have had our ups and downs, but over the last few days there have been quite a few downs. Everything is starting to get a little overwhelming and, in a way, surreal. It is hard to have to come up to the hospital every day to see him and I think we always leave a little bit worse than when we came in, even when there is good news. Today Ryan told us that he is not a big brother because Sam isn't home yet, he also told my mother yesterday that we left him at our old apartment when we moved... At least we have a 3 1/2 year old to make us laugh once in awhile...
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