Today Sam lost a little bit of the weight that he gained the day before and his Potassium level dropped a little. It was still within the normal range, but should not be dropping. He seemed very alert and awake this morning.
This afternoon Sam started to get a little lethargic and his eyes started to roll around again like they have the last few times that he started to get sick. This was very mild and could have just been because he was tired, but my gut is telling me that it is more than that. They have ordered more lab work and are monitoring his blood gases more closely now just in case he is getting ill again.
Today was pretty emotional for us, it is very hard to see him getting sick again. The longer that everything drags on, we find ourselves exhausted more often. Even little changes, like today, are getting harder to handle for us.