Monday, May 5, 2008

MONDAY, MAY 05, 2008 03:09 PM, CDT

Sam's fever continued to come and go throughout the night and was back again this morning at just over 103 degrees. Due to this, with the results of all of his blood, urine, and spinal fluid not being back yet have meant a stand still for us again. We will need to reschedule his biopsy and endoscopy for another day once he is healthy again. The main problem that they are having right now is maintaining all of his levels long enough to be able to sedate him for the procedure. I had hoped to go back to Appleton for work tomorrow but am awaiting a decision on when they will reschedule his procedure for so I don't get all the way home to find out that they will try again tomorrow.

Sam was very fussy today and was not feeling well. He suddenly is very gassy and uncomfortable and spent a good portion of the day today awake, crying, and angry.

On the bright side of things, Sam's weight is up today and he is almost up to 6 pounds. At 5 pounds 15 ounces this morning, he has broken his record weight.

The rest of us are still holding together OK, having the Ronald McDonald house here has helped greatly. We are just across the street from the hospital and can take turns spending time with Sam, Ryan, or both as Ryan's mood permits and there is a lot here for him to do.

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