Sam was able to go off of his TPN for 4 hours this morning with no problems. He was still getting fluid through his IV during this time, and they will slowly start to remove those as well a little at a time. The goal is to completely cycle him off all of his IV nutrition and fluids for a few hours each day. This will let him have a few hours of 'untethered' time each day as well as giving his liver a break.
Sam's weight was up to 6 pounds 12 ounces today.
We are still trying to stay pretty positive and are holding up pretty well considering the circumstances. It is easy to think of all of the things that Sam will never do, so instead we try to focus on the things that Sam will be able to do. There is a sign on the well next to the front door at the Ronald McDonald House that simply says 'One day at a time'. We don't have much choice but to take everything one day at a time right now and enjoy every moment of every day that we get to spend with Sam and watch him have new experiences, learn, and grow.